Resources


Mesothelioma Prognosis Network Survivors enjoy longer, healthier lives with loved ones thanks to our network of specialized mesothelioma doctors and cancer treatment centers. There is hope, and we can help. https://www.mesotheliomaprognosis.com/mesothelioma

http://www.kitonline.org Kids Included Together (KIT) provides best practices training to help communities, businesses, and child care & recreation programs include children with all kinds of disabilities and special needs. We offer a blended–learning approach that combines live, on–site training and online learning and resources.

http://www.php.com Parents Helping Parents (PHP) increases the quality of life for our most vulnerable by providing services, resources and support for children with special needs, their families, and caregivers.


http://homeivcare.com Home I.V. Care and Nutritional Service, a Joint Commission-accredited Pharmacy, delivers total parenteral nutrition, antibiotic, antimicrobial, pain, chemo and other specialty home infusion therapies, as well as enteral formulas, to Patients in the Commonwealth of Virginia, Maryland, West Virginia and North Carolina. Pharmacists and Registered Nurses provide state-of-the-art infusion […]

http://www.wrightslaw.com/advoc/articles/iep_guidance.html Parents, educators, advocates, and attorneys come to Wrightslaw for accurate, reliable information about special education law, education law, and advocacy for children with disabilities.

http://www.igliving.com/magazine/learn-about-ig-living.html IG Living is the only magazine for the immune globulin (IG) community comprised of patients who suffer from chronic illness and their caregivers. Our mission is to support the IG community through education, communication and advocacy.


http://www.ngly1.org” title=”http://www.ngly1.org Bringing together the best of science and patient stories to solve NGLY1’s challenges

http://www.missionmassimo.com The Mission Massimo Foundation aims to exponentially accelerate the discovery of novel genetic variations responsible for childhood Leukodystrophies and to translate these findings into clinical treatments.

https://www.dystonia-foundation.org The mission of the DMRF is to advance research for more treatments and ultimately a cure, to promote awareness and education, and to support the needs and well being of affected individuals and families.


http://globalgenes.org Global Genes is one of the leading rare disease patient advocacy organizations in the world. The non-profit organization promotes the needs of the rare disease community