Rare Genomics Institute

Rare Genomics is an international non-profit that provides access to cutting edge research technologies, physicians, and scientists across the globe. By providing an expert network and an online crowdfunding mechanism, RG helps families pursue personalized research projects for diseases not otherwise studied. We bring together scientists who share our passion for helping rare disease patients and leverage the crowdfunding capabilities of the Internet to bring the hope of a cure to our patients.

Click here to visit Rare Genomics Institute website. 

To download Rare Genomics free 150 page Rare Disease E-book, which Noah and Alexis are featured, click here.